Limited mobility | Unlimited stories: what is a Spoonie and am I one too?
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Thank you! <3
A new term for Spoonie that is not to do with the Matrix.
This is such a huge lesson for I have never heard of spoon theory ever before. I was hit by a motorcycle in my back at a low speed in early 2015. Though it didn't any major issues, it physically limited my ability to do much especially bending. This means I can no longer do my laundry (done once per week) because I'll be in pain until the other week's turn. But I can still do that laundry if I wanted to but I choose not to while keeping in mind what it will do to the same body after I have. Thank you for sharing this! :)
Hey @tezmel, wow, that's quite a story you share here! I'm sorry you've been limited physically, it's so easy to say 'I was hit by a motorcycle' but I know that short sentence cointains a lot of pain, revalidation and confrontation with it <3 Thank you for sharing your story and I hope you're able to use the spoon theory maybe to share with others and/or explain your limitations <3
What a heartfelt post. Thank you for this level of yourself. It takes an enormous amount of courage to make this kind of revelation.
Which I obviously lack. I have a long term disorder that I don't ignore exactly but that I refuse to admit to. I live life on my terms, and reserve the right to run out of spoons once in a while. If you can't accept that I am completely out of spoons the door is right there. Please shut it behind you because I don't have the energy.
Thanks Soyrosa. Your story has given me heart. I appreciate it.
Hey @bigtom13! I truly appreciate your comment!
Being vulnerable and 'acknowledging' is not an easy step to take. I've ignored a lot of my 'stuff' in the past, but have discovered being open and vulnerable about it actually helps. I've 'opened up' a few times before and have often, later, getting back: "Thank you for doing this, because you opened up I was able to... [insert awesome action taking]" - so I've learned it's almost always worth it to do so.
It's still not an 'automatic' thing to do for me personally, but I do it anyway.
Thanks for reading and 'seeing' the courage, and for letting it 'give you heart'. Take your time and do things on your own pace,* it's okay*!
I have heard about this spoon theory but I did not know exactly what it meant. My brain fog did not help remembering the term, thus I never googled it to see what it meant. Thank you for the explanation.
When you have limited energy levels, you need to think your day in advance and try to plan it according to your limitations. It does not mean you can't have fun anymore! You just have to be more cautious not to deplete your energy levels/spoons otherwise you won't be enjoying your day. Yes, there are a lot more things that you need to do or pack before going somewhere, but it's better to be prepared. When we have a "normal" day we tend to forget our limitations and end up drained of energy which is so precious.
I'm so glad I could 'give back' the term to you @lymepoet! I've noticed people who care about us like using the term, because it can be so much easier to ask 'how many spoons do you have left?', than to try to understand what we mean when we say our bodies are sore, we're tired... I hope some people around you are willing to read it.
Yes, we need to plan ahead more, not just days, but also the whole week - 'that day is heavy so I calculate resting days two days after that one'. It's okay and as long as we indeed stay within our limits we can still do awesome stuff and have a lot of fun. It's a constant finetuning though :D
Great to hear this experience and relation of the word with that experience, i really influenced by the example of spoon means, we most of the time store lot of thoughts in our mind and we always overthink about that, and this overthinking phase always hold us to do or live our life freely. Thanks for sharing this post with us and wishing you an great day. Stay blessed. 🙂
Thank you for sharing your thoughts on this @chireerocks! I also believe overthinking limits us too much.
Welcome. 🙂
Did not know you have this in your life. It must be a challenge to have to keep such a close eye on how to spend your energy, on what to do and what not to do. Makes me appreciate your awesome photography work and lovely Steemit posts and growing success in this community even more!
Thanks a lot @amritadeva! I don't write about this topic constantly but the story is growing from time to time. These are sometimes sensitive / hard blogs to write so I gladly distract myself from them by sharing photography stories more, hehe ;-) Thanks for acknowledging the photography I do despite of the limitations, it's something I love so much that I know if I ever end up in a wheelchair I'll still find ways to take pictures! <3
its useful i liked it i hope the post most people see it and upvote this:)
Hi Rosanne, Thanks for sharing your thoughts and a new term. I have a a really good friend that this applies to (so I sent this post to her). What I appreciate even more is your openness and that I can learn how to relate and love and understand and help her even more. As a person with full mobility it is not easy to understand the long term limited mobility you are talking about. So thank you.
Thank you for commenting @sjarvie5! I love hearing that you sent the post to a friend! I hope she learns something from it. The term 'Spoonie' also helps people around you asking things like 'how many spoonies do you have today?', instead of 'how are you feeling'? (This question is often way more difficult to answer).
Thanks for your willingness to learn about limited mobility, and if you can let me know what your friend said about it?
thank you @soyrosa for sharing this part of your life with us, you should really just be doing what feel comfortable doing, and you alone are the only one who knows what that is. they are your choices and the fact that you wish to safe your strength for what you really love doing sounds very wise to me.
Thanks a lot @trucklife-family! Indeed these are my choices and I'm not planning to make life more difficult, but I do sometimes think I play it on the safe side - maybe challenge myself a bit more from time to time? :-) It's a continued puzzle :D