Life's Diary Notes 📕🖊

I was off from work today, thank goodness because I really needed to get caught up on my sleep. I barely slept the other night, and yes it was due to the heat again. I felt rather unwell getting out of bed that morning and hoped the cooler air outside would help alleviate some of the problems. While the cooler air did make me feel a bit better I remained very tired throughout the day. My head was not working as I made 2 big mistakes that day, mistakes that I wouldn't typically make. This was even after having taken a nap in the late afternoon. Thankfully last night I was able to get some much improved sleep. I was able to go back to sleep after taking my medication which was good. But the only down side to that is starting the day rather late when I have so much to get done. I'm working on cleaning/clearing the kitchen and fixing a few things. It's what I spent most of the day doing, and at least for now I can say I'm done with that. I will now be moving into the hallway which I hope will be a little easier. I already started on this today, and so if I'm not going to be working as much compared to some of the previous weeks I should get that part done much quicker.

(Images By: @simonjay)

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Life's Diary Notes 📕🖊

My friend had requested the other day that I help them at the work with organising some of the information and planning boards. My friend had a vision for it and I honestly didn't think it was going too take that long. They thought the same, but we ended up staying there for many hours and still not getting it completed. I actually did a lot of the work, my friend mostly complained A LOT about the heat rather than doing much work. We even had to take breaks because of the heat, well I was fine to continue on without a break, and did infact continue working while they sat at the desk. And so considering all this I'm a little disappointed for my friend to say that "I was not slow but that I did make sure things are done correctly." I might be completely wrong but it honestly sounds like a very polite way of complaining I took too long. And well I'm a sick person now, I still went to help them using my own free time that I could of used to rest, I got no financial benefit for doing a couple hours of work. I had to travel some distance to get there, it was them who made a mess of a few things right before asking me to clear everything up which I had done and they made it worse again. In the end of all that, yet this is the thanks I get. With many people it just seems no matter the effort you put in, it's just not good enough. Don't ask me to do something if you expect it to be done in a rushed and sloppy way.

At my appointment with the specialist things went well, but honestly I'm still not fully sure how I feel about it. The number of bacteria fighting cells as increased again, this is something I was really not expecting. This does prove the body is still fighting something. The specialist kindly is giving me options, but what I really need is guidance, and I understand this is also difficult for him to give me due to the nature of this condition. But the conclusion is to, firstly reach the max amount of antibiotic permitted. And then, to just continue doing what I have already been doing, So we now "hope and pray" for further improvements by our next meeting. Today I received the results from the medical tests I have recently made and unfortunately it was not what I expected. In previous tests the results were very positive, however it appears the body is beginning to show signs of struggling with it's fighting cell numbers getting lower and the enemy making a come back. My specialist said that for now this is not to cause worry. I will be honest, it's was making me panic more knowing this information. He said we will keep an eye on this and I hope it was just a bleep that we can reclaim. If not it means I could be returning to getting worse again. Well hope you all have a good day or night and I will hopefully see you on the next Steemit post.

Aug 2026- The body continues to fight this condition placed upon me. I'm now on day 199 of the specialist treatment plan. Will it ever end!? Still it's been helping me to slowly minimize symptoms, but sadly not to a point where it's fully cured. There's a strong probability that there may still be further underlining issues 🙁. But that will have to be a problem for later. I'm currently my 3rd cycle of another 90 days😫. And will be aiming to reach the max amount of medication that I can take in a effort to push for further improvement. Obtaining the treatment itself continues to be a challenge. This is with the pharmacy alone. The specialist doctor as fully confirmed for me to be on this treatment long term. But I have to keep fighting them "the pharmacy" to allow me excess to the medication that I been cleared to have...🤷‍♂️ This is not right at all!!😡! I shouldn't have to be doing this while unwell. Especially since already having gone through the correct and "yet costly" legal process of obtaining the medication.

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